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The relevance of stroke care for living well with post-stroke aphasia: a qualitative interview study with working-aged adults.

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dc.contributor.author Manning, Molly
dc.contributor.author MacFarlane, Anne E.
dc.contributor.author Hickey, Anne
dc.contributor.author Galvin, Rose
dc.date.accessioned 2021-01-20T09:36:55Z
dc.date.issued 2020
dc.identifier.uri http://hdl.handle.net/10344/9626
dc.description peer-reviewed en_US
dc.description.abstract Purpose: This study aimed to explore the perspectives of working-aged adults with post-stroke aphasia (PWA) towards what has or would help them in living well with aphasia (LWA). This paper reports the findings in relation to stroke care and its relevance for LWA. Materials and methods: This qualitative study was designed with input from a Public & Patient Involvement advisory group. We conducted in-depth, semistructured interviews with 14 PWA. Data were analysed following principles of reflexive thematic analysis. Results: Support services and LWA spanned 5 themes: Inpatient care; Support in the community; Speech therapy; Mental health; and Aphasia education and training. Per the findings, all aspects of stroke care were affected and challenged by aphasia. Access to services and information was variable. PWA of workingage, their families and children need access to person-centred stroke care and information responsive to their changing needs at all stages of recovery. Healthcare workers must be equipped with aphasia competency. Conclusions: The results highlight a need for equitable, transparent, responsive access to services, information and stroke liaison support. The findings extend knowledge of the importance of stroke care for supporting working-aged adults and their families to live well in the context of aphasia. en_US
dc.language.iso eng en_US
dc.publisher Taylor and Francis en_US
dc.relation.ispartofseries Disability and Rehabilitation;
dc.relation.uri https://doi.org/10.1080/09638288.2020.1863483
dc.rights This is an Author's Accepted Manuscript of an article whose final and definitive form, the Version of Record, has been published in Disability and Rehabilitation 2020 copyright Taylor & Francis, available online at: https://doi.org/10.1080/09638288.2020.1863483 en_US
dc.subject aphasia en_US
dc.subject health services research en_US
dc.subject language therapy en_US
dc.subject patient involvement en_US
dc.subject rehabilitation en_US
dc.subject stroke en_US
dc.title The relevance of stroke care for living well with post-stroke aphasia: a qualitative interview study with working-aged adults. en_US
dc.type info:eu-repo/semantics/article en_US
dc.type.supercollection all_ul_research en_US
dc.type.supercollection ul_published_reviewed en_US
dc.identifier.doi 10.1080/09638288.2020.1863483
dc.contributor.sponsor HRB en_US
dc.relation.projectid SPHeRE/2013/1 en_US
dc.date.embargoEndDate 2021-12-28
dc.embargo.terms 2021-12-28 en_US
dc.rights.accessrights info:eu-repo/semantics/openAccess en_US


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