The relevance of stroke care for living well with post-stroke aphasia: a qualitative interview study with working-aged adults.

Abstract

Purpose: This study aimed to explore the perspectives of working-aged adults with post-stroke aphasia (PWA) towards what has or would help them in living well with aphasia (LWA). This paper reports the findings in relation to stroke care and its relevance for LWA. Materials and methods: This qualitative study was designed with input from a Public & Patient Involvement advisory group. We conducted in-depth, semistructured interviews with 14 PWA. Data were analysed following principles of reflexive thematic analysis. Results: Support services and LWA spanned 5 themes: Inpatient care; Support in the community; Speech therapy; Mental health; and Aphasia education and training. Per the findings, all aspects of stroke care were affected and challenged by aphasia. Access to services and information was variable. PWA of workingage, their families and children need access to person-centred stroke care and information responsive to their changing needs at all stages of recovery. Healthcare workers must be equipped with aphasia competency. Conclusions: The results highlight a need for equitable, transparent, responsive access to services, information and stroke liaison support. The findings extend knowledge of the importance of stroke care for supporting working-aged adults and their families to live well in the context of aphasia.