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Patients’, family members’ and healthcare practitioners’experiences of Stevens–Johnson syndrome and toxic epidermal necrolysis: a qualitative descriptive study using emotional touchpoints

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dc.contributor.author O'Reilly, Pauline
dc.contributor.author Whelan, B.
dc.contributor.author Ramsay, Bart
dc.contributor.author Kennedy, Catriona
dc.contributor.author Meskell, Pauline
dc.contributor.author Coffey, Alice
dc.contributor.author Wilson, Donna M.
dc.contributor.author Fortune, Dónal G.
dc.contributor.author Ryan, S.
dc.date.accessioned 2020-11-30T15:53:46Z
dc.date.available 2020-11-30T15:53:46Z
dc.date.issued 2021
dc.identifier.uri http://hdl.handle.net/10344/9496
dc.description peer-reviewed en_US
dc.description Please see link to podcast linked to this paper: https://open.spotify.com/episode/3wtcDxQebURXG8cybAHFHK?si=EqP0ovECS6eFl1qQ9ZDXoA&utm_source=copy-link
dc.description.abstract Stevens–Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN) are devastating conditions resulting from a severe immune‐mediated mucocutaneous reaction which normally occurs as a result of medication.1 In the acute phase, the patient presents with a febrile illness, followed by skin and mucous membrane necrosis and detachment.2 The patient can quickly become critically ill and is treated as a medical emergency. There may be long‐lasting psychological effects on patients and their significant others.3 However, there is a dearth of research on the experiences of patients with SJS/TEN, those close to them and healthcare practitioners (HCPs) providing care. en_US
dc.language.iso eng en_US
dc.publisher Wiley and Sons Ltd en_US
dc.relation.ispartofseries Journal of the European Academy of Dermatology and Venereology; 35 (3), pp. e232-e234
dc.relation.uri https://doi.org/10.1111/jdv.16958
dc.subject Stevens–Johnson syndrome en_US
dc.title Patients’, family members’ and healthcare practitioners’experiences of Stevens–Johnson syndrome and toxic epidermal necrolysis: a qualitative descriptive study using emotional touchpoints en_US
dc.type info:eu-repo/semantics/contributionToPeriodical en_US
dc.type.supercollection all_ul_research en_US
dc.type.supercollection ul_published_reviewed en_US
dc.identifier.doi 10.1111/jdv.16958
dc.rights.accessrights info:eu-repo/semantics/openAccess en_US
dc.internal.rssid 2983318


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