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Nursing people with intellectual disability and dementia experiencing pain: a integrative review

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dc.contributor.author Dillane, Imelda
dc.contributor.author Doody, Owen
dc.date.accessioned 2019-09-25T13:43:14Z
dc.date.issued 2019
dc.identifier.uri http://hdl.handle.net/10344/8072
dc.description peer-reviewed en_US
dc.description.abstract Aims and objectives To explore the current evidence of nurses caring for people with intellectual disability and dementia who experience pain. Background People with intellectual disability are ageing and are experiencing age‐related health conditions including dementia and conditions associated with pain, but at an earlier age. Addressing the needs of people with intellectual disability who develop dementia is a new challenge for nurses. Design An integrative literature review. Methods A systematic search of databases: CINAHL, MEDLINE, PsycINFO, Cochrane, EMBASE, Academic Search Complete, Scopus and Web of Science between 27 October 2017–7 November 2017. Hand searching and review of secondary references were also undertaken. Quality appraisal (Crowe Critical Appraisal Tool), thematic data analysis (Braun and Clarke, Qualitative Research in Psychology, 3, 2006, 77) and reporting using the PRISMA guidelines. Results Seven papers met the inclusion criteria, and three themes emerged from this review: nurses knowledge of ageing, dementia and pain; recognising pain in people with intellectual disability and dementia; and the role of nurse education. People with intellectual disability and dementia have difficulty communicating their pain experience compounded by pre‐existing communication difficulties. Conclusions A pain experience can present similar to behavioural and psychological symptoms of dementia, and diagnostic overshadowing often occurs whereby a pain need is misinterpreted as behavioural and psychological symptoms resulting in inappropriate treatment. Nurses need greater knowledge about the presence of pain and potential causes in people with intellectual disability and dementia, and education can be effective in addressing this knowledge deficit. Relevance to clinical practice Pain assessment tools for people with intellectual disability and dementia need to include behavioural elements, and baseline assessments are required to identify changes in presentation. Nurses need to recognise and respond to pain based on the evidence in order to deliver quality care. en_US
dc.language.iso eng en_US
dc.publisher Wiley and Sons en_US
dc.relation.ispartofseries Journal of Clinical Nursing;28 (13-14), pp. 2472-2485
dc.relation.uri http://dx.doi.org/10.1111/jocn.14834
dc.rights This is the author accepted peer reviewed version of the following article:Nursing people with intellectual disability and dementia experiencing pain: a integrative review, which has been published in final form at https://doi.org/10.1111/jocn.14834| . This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving. http://olabout.wiley.com/WileyCDA/Section/id-828039.html#terms en_US
dc.subject pain en_US
dc.subject intellectual disability en_US
dc.subject dementia en_US
dc.subject education en_US
dc.subject integrative review en_US
dc.title Nursing people with intellectual disability and dementia experiencing pain: a integrative review en_US
dc.type info:eu-repo/semantics/article en_US
dc.type.supercollection all_ul_research en_US
dc.type.supercollection ul_published_reviewed en_US
dc.date.updated 2019-09-25T13:26:44Z
dc.description.version ACCEPTED
dc.identifier.doi https://doi.org/10.1111/jocn.14834
dc.date.embargoEndDate 2020-02-20
dc.embargo.terms 2020-02-20 en_US
dc.rights.accessrights info:eu-repo/semantics/openAccess en_US
dc.internal.rssid 2906677
dc.internal.copyrightchecked Yes
dc.identifier.journaltitle Journal Of Clinical Nursing
dc.description.status peer-reviewed


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