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Perspectives of people with aphasia post stroke towards personal recovery and living successfully: a systematic review and thematic synthesis

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dc.contributor.author Manning, Molly
dc.contributor.author MacFarlane, Anne E.
dc.contributor.author Hickey, Anne
dc.contributor.author Franklin, Sue
dc.date.accessioned 2019-04-18T13:38:28Z
dc.date.available 2019-04-18T13:38:28Z
dc.date.issued 2019
dc.identifier.uri http://hdl.handle.net/10344/7768
dc.description peer-reviewed en_US
dc.description.abstract Background There is increased focus on supporting people with chronic conditions to live well via person- centred, integrated care. There is a growing body of qualitative literature examining the insider perspectives of people with post-stroke aphasia (PWA) on topics relating to personal recovery and living successfully (PR-LS). To date no synthesis has been conducted examining both internal and external, structural influences on living well. In this study, we aimed to advance theoretical understanding of how best to promote and support PR-LS by integrating the perspectives of PWA on a wide range of topics relating to PR-LS. This is essential for planning and delivering quality care. Methods and findings We conducted a systematic review, following PRISMA guidelines, and thematic synthesis. Following a search of 7 electronic databases, 31 articles were included and critically appraised using predetermined criteria. Inductive and iterative analysis generated 5 analytical themes about promoting PR-LS. Aphasia occurs in the context of a wider social network that provides valued support and social companionship and has its own need for formal support. PWA want to make a positive contribution to society. The participation of PWA is facilitated by enabling environments and opportunities. PWA benefit from access to a flexible, responsive, life-relevant range of services in the long-term post-stroke. Accessible information and collaborative interactions with aphasia-aware healthcare professionals empower PWA to take charge of their condition and to navigate the health system. Conclusion The findings highlight the need to consider wider attitudinal and structural influences on living well. PR-LS are promoted via responsive, long-term support for PWA, friends and family,and opportunities to participate autonomously and contribute to the community. Shortcomings in the quality of the existing evidence base must be addressed in future studies to ensure that PWA are meaningfully included in research and service development initiatives. en_US
dc.language.iso eng en_US
dc.publisher Public Library of Science en_US
dc.relation.ispartofseries PLos ONe;14 (3): e014200
dc.subject aphasia en_US
dc.subject post stroke en_US
dc.subject cronic conditions en_US
dc.title Perspectives of people with aphasia post stroke towards personal recovery and living successfully: a systematic review and thematic synthesis en_US
dc.type info:eu-repo/semantics/article en_US
dc.type.supercollection all_ul_research en_US
dc.type.supercollection ul_published_reviewed en_US
dc.identifier.doi 10.1371/journal.pone.0214200
dc.contributor.sponsor HRB en_US
dc.relation.projectid SPHeRE/2013/1 en_US
dc.rights.accessrights info:eu-repo/semantics/openAccess en_US
dc.internal.rssid 2902110


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