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National survey of indigenous primary healthcare capacity and delivery models in Canada: the TransFORmation of IndiGEnous PrimAry HEAlthcare delivery (FORGE AHEAD) community profile survey

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dc.contributor.author Tompkins, Jordan W.
dc.contributor.author Mequanint, Selam
dc.contributor.author Barre, Douglas Edward
dc.contributor.author Fournie, Meghan
dc.contributor.author Green, Michael E.
dc.contributor.author Hanley, Anthony J.
dc.contributor.author Hayward, Mariam Naqshbandi
dc.contributor.author Zwarenstein, Merrick
dc.contributor.author Harris, Stewart B.
dc.contributor.other Salsberg, Jon
dc.date.accessioned 2019-02-08T12:39:07Z
dc.date.available 2019-02-08T12:39:07Z
dc.date.issued 2018
dc.identifier.uri http://hdl.handle.net/10344/7568
dc.description peer-reviewed en_US
dc.description.abstract Background: There is a significant deficiency of national health information for Indigenous peoples in Canada. This manuscript describes the Community Profile Survey (CPS), a community-based, national-level survey designed to identify and describe existing healthcare delivery, funding models, and diabetes specific infrastructure and programs in Indigenous communities. Methods: The CPS was developed collaboratively through FORGE AHEAD and the First Nations and Inuit Health Branch of Health Canada. Regional and federal engagement and partnerships were built with Indigenous organizations to establish regionally-tailored distribution of the 8-page CPS to 440 First Nations communities. Results were collected (one survey per community) and reported in strata by region, with descriptive analyses performed on all variables. Results were shared with participating communities and regional/federal partners through tailored reports. Results: A total of 84 communities completed the survey (19% response rate). The majority of communities had a health centre/office to provide service to their patients with diabetes, with limited on-reserve hospitals for ambulatory or case-sensitive conditions. Few healthcare specialists were located on-site, with patients frequently travelling off-site (> 40 km) for diabetes-related complications. The majority of healthcare professionals on-site were Health Directors, Community Health Nurses, and Home Care Nurses. Many communities had a diabetes registry but few reported a diabetes surveillance system. Regional variation in healthcare services, diabetes programs, and funding models were noted, with most communities engaging in some type of innovative strategy to improve care for patients with diabetes. Conclusions: The CPS is the first community-based, national-level survey of its kind in Canada. Although the response rate was low, the CPS was distributed and successfully administered across a broad range of First Nations communities, and future considerations would benefit from a governance structure and leadership that strengthens community engagement, and a longitudinal research approach to increase the representativeness of the data. This type of information is important for communities and regions to inform decision making (maintain successes, and identify areas for improvement), strengthen health service delivery and infrastructure, increase accessibility to healthcare personnel, and allocate funding and/or resources to build capacity and foster a proactive chronic disease prevention and management approach for Indigenous communities across Canada. Trial registration: Current ClinicalTrial.gov protocol ID NCT02234973. Registered: September 9, 2014. en_US
dc.language.iso eng en_US
dc.publisher BMC en_US
dc.relation.ispartofseries BMC Health Services Research;18:828
dc.relation.uri http://dx.doi.org/10.1186/s12913-018-3578-8
dc.subject national en_US
dc.subject survey en_US
dc.subject primary healthcare en_US
dc.subject diabetes en_US
dc.subject indigenous en_US
dc.subject chronic disease en_US
dc.subject quality improvement en_US
dc.title National survey of indigenous primary healthcare capacity and delivery models in Canada: the TransFORmation of IndiGEnous PrimAry HEAlthcare delivery (FORGE AHEAD) community profile survey en_US
dc.type info:eu-repo/semantics/article en_US
dc.type.supercollection all_ul_research en_US
dc.type.supercollection ul_published_reviewed en_US
dc.identifier.doi 10.1186/s12913-018-3578-8
dc.contributor.sponsor Canadian Institutes of Health Research en_US
dc.relation.projectid MCO 117675 en_US
dc.relation.projectid 297910 en_US
dc.relation.projectid PME-133824 en_US
dc.rights.accessrights info:eu-repo/semantics/openAccess en_US


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