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Ethnic minority health in Ireland—cocreating knowledge (EMH-IC): a participatory health research protocol

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dc.contributor.author Hannigan, Ailish
dc.contributor.author Basogomba, Alphonse
dc.contributor.author LeMaster, Joseph W.
dc.contributor.author Nurse, Diane
dc.contributor.author O'Reilly, Fiona
dc.contributor.author Roura, Maria
dc.contributor.author Villarroel, Nazmy
dc.contributor.author MacFarlane, Anne E.
dc.date.accessioned 2018-11-14T09:59:49Z
dc.date.available 2018-11-14T09:59:49Z
dc.date.issued 2018
dc.identifier.uri http://hdl.handle.net/10344/7307
dc.description peer-reviewed en_US
dc.description.abstract Introduction International policy recommends continuous, cost-effective monitoring of health data to enable health services to identify and respond to health inequities as experienced by different ethnic groups. However, there is a lack of routinely collected ethnicity data, particularly in primary care, and very little implementation research internationally to understand how ethnic identifiers are introduced, embedded and used in healthcare settings. This paper describes a protocol for a novel participatory health research project with the objective of building the evidence base on ethnic minority health in Ireland. Findings on the participatory appraisal of ethnic identifiers as an intervention to generate useful data about minority and majority ethnic groups will have relevance in other settings and countries. Methods and analysis This multidisciplinary project is designed as a participatory health research study where all stakeholders, including ethnic minority communities, participate in co-design of the research protocol, project governance, collaborative data interpretation and disseminating findings. A national catalogue of all routinely collected health data repositories will be electronically searched for any repositories that contain information on ethnicity. A secondary quantitative analysis of a population-representative cohort study, Growing Up in Ireland, will be carried out to compare the health of ethnic minority and majority groups. A qualitative case study informed by normalisation process theory will be carried out at three primary care sites to monitor the implementation of an ethnic identifier and identify barriers and levers to implementation. Ethics and dissemination Ethical approval for the qualitative case study has been granted by the Irish Council for General Practitioners (06/09/17). Permission to access data from Growing Up in Ireland has been granted by the Director General of the Central Statistics Office. Dissemination will be carried out at community events and academic conferences, in peer-reviewed journal publications, and through academic and healthcare provider networks. en_US
dc.language.iso eng en_US
dc.publisher BMJ Publishing Group en_US
dc.relation HRA-PHR-2015-1344 en_US
dc.relation.ispartofseries BMJ Open;8:e026335
dc.relation.uri http://dx.doi.org/10.1136/bmjopen-2018-026335
dc.subject health data en_US
dc.subject health research study en_US
dc.title Ethnic minority health in Ireland—cocreating knowledge (EMH-IC): a participatory health research protocol en_US
dc.type info:eu-repo/semantics/article en_US
dc.type.supercollection all_ul_research en_US
dc.type.supercollection ul_published_reviewed en_US
dc.identifier.doi 10.1136/bmjopen-2018-026335
dc.contributor.sponsor HRB en_US
dc.relation.projectid HRA-PHR-2015-1344 en_US
dc.rights.accessrights info:eu-repo/semantics/openAccess en_US
dc.internal.rssid 2868625


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