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Public and patient involvement in quantitative health research:A statistical perspective

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dc.contributor.author Hannigan, Ailish
dc.date.accessioned 2018-07-02T09:04:24Z
dc.date.available 2018-07-02T09:04:24Z
dc.date.issued 2018
dc.identifier.uri http://hdl.handle.net/10344/6931
dc.description peer-reviewed en_US
dc.description.abstract Background: The majority of studies included in recent reviews of impact for public and patient involvement (PPI) in health research had a qualitative design. PPI in solely quantitative designs is underexplored, particularly its impact on statistical analysis. Statisticians in practice have a long history of working in both consultative (indirect) and collaborative (direct) roles in health research, yet their perspective on PPI in quantitative health research has never been explicitly examined. Objective: To explore the potential and challenges of PPI from a statistical perspective at distinct stages of quantitative research, that is sampling, measurement and statistical analysis, distinguishing between indirect and direct PPI. Conclusions: Statistical analysis is underpinned by having a representative sample, and a collaborative or direct approach to PPI may help achieve that by supporting access to and increasing participation of under-represented groups in the population. Acknowledging and valuing the role of lay knowledge of the context in statistical analysis and in deciding what variables to measure may support collective learning and advance scientific understanding, as evidenced by the use of participatory modelling in other disciplines. A recurring issue for quantitative researchers, which reflects quantitative sampling methods, is the selection and required number of PPI contributors, and this requires further methodological development. Direct approaches to PPI in quantitative health research may potentially increase its impact, but the facilitation and partnership skills required may require further training for all stakeholders, including statisticians. en_US
dc.language.iso eng en_US
dc.publisher Wiley Open Access
dc.relation.ispartofseries Health Expectations 1– 5
dc.subject clinical trial en_US
dc.subject cohort studies en_US
dc.subject participatory en_US
dc.subject public and patient involvement en_US
dc.subject quantitative en_US
dc.subject statistics en_US
dc.title Public and patient involvement in quantitative health research:A statistical perspective en_US
dc.type info:eu-repo/semantics/article en_US
dc.type.supercollection all_ul_research en_US
dc.type.supercollection ul_published_reviewed en_US
dc.identifier.doi 10.1111 / hex.12800
dc.rights.accessrights info:eu-repo/semantics/openAccess en_US


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