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Narratives of health and illness: arts-based research capturing the lived experience of dementia

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dc.contributor.author Moss, Hilary
dc.contributor.author O'Neill, Desmond
dc.date.accessioned 2017-11-01T11:47:23Z
dc.date.available 2017-11-01T11:47:23Z
dc.date.issued 2017
dc.identifier.uri http://hdl.handle.net/10344/6216
dc.description peer-reviewed en_US
dc.description.abstract This paper presents three artists residencies in a geriatric medicine unit in a teaching hospital. The aim of the residencies was creation of new work of high artistic quality reflecting the lived experience of the person with dementia and greater understanding of service user experience of living with dementia. This paper also explores arts-based research (ABR) methodologies in a medical setting. Method: ABR and narrative enquiry were the method used in this study. Artists had extensive access to service users with dementia, family carers and clinical team. Projects were created through collaboration between clinical staff, arts and health director, artist, patients and family carers. Each performance was accompanied by a public seminar discussing dementia. Evaluations were undertaken following each residency.  The process of creating artistic responses to dementia is outlined, presented and discussed. Results: The artworks were well received with repeat performances and exhibitions requested. Evaluations of each residency indicated increased understanding of dementia. The narratives within the artworks aided learning about dementia. The results are a new chamber music composition; a series of visual artworks created collaboratively between visual artist and patients and family carers and a dance film inspired by a dancer s residency, all created through narrative enquiry. Discussion and Conclusion: These projects support the role of ABR as creative process and qualitative research method which contributes to illuminating and exploring the lived experience of dementia.  The arts act as a reflective tool for learning and understanding a complex health condition, as well as creating opportunities for increased understanding and public awareness of dementia. Issues arising in ABR in medical settings are highlighted, including ethical issues, the importance of service user narrative and multi-disciplinary collaboration in arts and health practice and research. en_US
dc.language.iso eng en_US
dc.publisher SAGE Publications en_US
dc.relation.ispartofseries Dementia-International Journal Of Social Research And Practice; 18 (6), pp. 2008-2017
dc.relation.uri https://doi.org/10.1177/1471301217736163
dc.subject arts-based methods en_US
dc.subject dementia en_US
dc.subject artists en_US
dc.subject narrative en_US
dc.title Narratives of health and illness: arts-based research capturing the lived experience of dementia en_US
dc.type info:eu-repo/semantics/article en_US
dc.type.supercollection all_ul_research en_US
dc.type.supercollection ul_published_reviewed en_US
dc.date.updated 2017-10-31T17:51:52Z
dc.description.version ACCEPTED
dc.identifier.doi https://doi.org/10.1177/1471301217736163
dc.rights.accessrights info:eu-repo/semantics/openAccess en_US
dc.internal.rssid 2727677
dc.internal.copyrightchecked Yes
dc.identifier.journaltitle Dementia-International Journal Of Social Research And Practice
dc.description.status peer-reviewed


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