University of Limerick Institutional Repository

Narratives of health and illness: arts-based research capturing the lived experience of dementia

DSpace Repository

Show simple item record Moss, Hilary O'Neill, Desmond 2017-11-01T11:47:23Z 2017-11-01T11:47:23Z 2017
dc.description peer-reviewed en_US
dc.description.abstract This paper presents three artists residencies in a geriatric medicine unit in a teaching hospital. The aim of the residencies was creation of new work of high artistic quality reflecting the lived experience of the person with dementia and greater understanding of service user experience of living with dementia. This paper also explores arts-based research (ABR) methodologies in a medical setting. Method: ABR and narrative enquiry were the method used in this study. Artists had extensive access to service users with dementia, family carers and clinical team. Projects were created through collaboration between clinical staff, arts and health director, artist, patients and family carers. Each performance was accompanied by a public seminar discussing dementia. Evaluations were undertaken following each residency.  The process of creating artistic responses to dementia is outlined, presented and discussed. Results: The artworks were well received with repeat performances and exhibitions requested. Evaluations of each residency indicated increased understanding of dementia. The narratives within the artworks aided learning about dementia. The results are a new chamber music composition; a series of visual artworks created collaboratively between visual artist and patients and family carers and a dance film inspired by a dancer s residency, all created through narrative enquiry. Discussion and Conclusion: These projects support the role of ABR as creative process and qualitative research method which contributes to illuminating and exploring the lived experience of dementia.  The arts act as a reflective tool for learning and understanding a complex health condition, as well as creating opportunities for increased understanding and public awareness of dementia. Issues arising in ABR in medical settings are highlighted, including ethical issues, the importance of service user narrative and multi-disciplinary collaboration in arts and health practice and research. en_US
dc.language.iso eng en_US
dc.publisher SAGE Publications en_US
dc.relation.ispartofseries Dementia-International Journal Of Social Research And Practice; 18 (6), pp. 2008-2017
dc.subject arts-based methods en_US
dc.subject dementia en_US
dc.subject artists en_US
dc.subject narrative en_US
dc.title Narratives of health and illness: arts-based research capturing the lived experience of dementia en_US
dc.type info:eu-repo/semantics/article en_US
dc.type.supercollection all_ul_research en_US
dc.type.supercollection ul_published_reviewed en_US 2017-10-31T17:51:52Z
dc.description.version ACCEPTED
dc.rights.accessrights info:eu-repo/semantics/openAccess en_US
dc.internal.rssid 2727677
dc.internal.copyrightchecked Yes
dc.identifier.journaltitle Dementia-International Journal Of Social Research And Practice
dc.description.status peer-reviewed

Files in this item

This item appears in the following Collection(s)

Show simple item record

Search ULIR


My Account