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Using participatory learning & action research to access and engage with ‘hard to reach’ migrants in primary healthcare research

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dc.contributor.author O'Reilly-de Brún, Mary
dc.contributor.author de Brún, Tomas
dc.contributor.author Okonkwo, Ekaterina
dc.contributor.author Bonsenge-Bokanga, Jean-Samuel
dc.contributor.author De Almeida Silva, Maria Manuela
dc.contributor.author Ogbebor, Florence
dc.contributor.author Mierzejewska, Aga
dc.contributor.author Nnadi, Lovina
dc.contributor.author van Weel-Baumgarten, Evelyn
dc.contributor.author van Weel, Chris
dc.contributor.author van den Muijsenbergh, Maria
dc.contributor.author MacFarlane, Anne E.
dc.date.accessioned 2016-02-25T16:40:05Z
dc.date.available 2016-02-25T16:40:05Z
dc.date.issued 2016
dc.identifier.uri http://hdl.handle.net/10344/4911
dc.description peer-reviewed en_US
dc.description.abstract Communication problems occur in general practice consultations when migrants and general practitioners do not share a common language and culture. Migrants’ perspectives have rarely been included in the development of guidelines designed to ameliorate this. Considered ‘hard-to-reach’ on the basis of inaccessibility, language discordance and cultural difference, migrants have been consistently excluded from participation in primary healthcare research. The purpose of this qualitative study was to address this gap. Methods: The study was conducted in the Republic of Ireland, 2009 – 2011. We developed a multi-lingual community-university research team that included seven established migrants from local communities. They completed training in Participatory Learning & Action (PLA) - a qualitative research methodology. Then, as trained service-user peer researchers (SUPERs) they used their access routes, language skills, cultural knowledge and innovative PLA techniques to recruit and engage in research with fifty-one hard-to-reach migrant service-users (MSUs). Results & discussion: In terms of access, university researchers successfully accessed SUPERs, who, in turn, successfully accessed, recruited and retained MSUs in the study. In terms of meaningful engagement, SUPERs facilitated a complex PLA research process in a language-concordant manner, enabling inclusion and active participation by MSUs. This ensured that MSUs’ perspectives were included in the development of a guideline for improving communication between healthcare providers and MSUs in Ireland. SUPERs evaluated their experiences of capacity-building, training, research fieldwork and dissemination as positively meaningful for them. MSUs evaluated their experiences of engagement in PLA fieldwork and research as positively meaningful for them. Given the need to build primary healthcare ‘from the ground up’, the perspectives of diverse groups, especially the hard-to-reach, must become a normative part of primary healthcare research. PLA is a powerful, practical ‘fit-for-purpose’ methodology for achieving this: enabling hard-to-reach groups to engage meaningfully and contribute with ease to academic research. PLA has significant potential to become a ‘standard’ or generic approach in building community-based primary health care. Community–university partnerships have a significant role to play in this, with capacity to radically influence the shape of healthcare research, expanding the research agenda to incorporate the views and needs of hard-to-reach and vulnerable populations. en_US
dc.language.iso eng en_US
dc.publisher BioMed Central en_US
dc.relation.ispartofseries BMC Health Services Research;16:25
dc.relation.uri http://dx.doi.org/10.1186/s12913-015-1247-8
dc.subject primary healthcare en_US
dc.subject migrants en_US
dc.subject user involvement en_US
dc.subject meaningful engagement en_US
dc.subject participatory research en_US
dc.subject guidelines en_US
dc.title Using participatory learning & action research to access and engage with ‘hard to reach’ migrants in primary healthcare research en_US
dc.type info:eu-repo/semantics/article en_US
dc.type.supercollection all_ul_research en_US
dc.type.supercollection ul_published_reviewed en_US
dc.identifier.doi 10.1186/s12913-015-1247-8
dc.contributor.sponsor HRB en_US
dc.rights.accessrights info:eu-repo/semantics/openAccess en_US
dc.internal.rssid 1629130


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