Browsing Research Institutes, Centres and Units by Author "Achenbach, Stephan"

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Quality of life in patients with Marfan syndrome: a cross-sectional study of 102 adult patients

Andonian, Caroline; Freilinger, Sebastian; Achenbach, Stephan; Ewert, Peter; Gundlach, Ulrike; Kaemmerer, Harald; Nagdyman, Nicole; Neidenbach, Rhoia Clara; Pieper, Lars; Schelling, Jörg; Weyand, Michael; Beckmann, Jürgen (AME Publishing, 2021)

Background: Marfan syndrome (MFS) is a genetically determined multiorgan disease that leads to severe physiological and psychological impairments in adult life. Little consensus exists regarding quality of life (QOL) ...
'Well-being paradox’ revisited: a cross-sectional study of quality of life in over 4000 adults with congenital heart disease

Andonian, Caroline; Freilinger, Sebastian; Achenbach, Stephan; Ewert, Peter; Gundlach, Ulrike; Hoerer, Jürgen; Kaemmerer, Harald; Pieper, Lars; Weyand, Michael; Neidenbach, Rhoia Clara; Beckmann, Jürgen (BMJ Publishing Group, 2021)

Objective The present cross-sectional study investigated quality of life (QOL) in a large cohort of German adults with congenital heart disease (ACHDs) in association with patient-related and clinical variables. Design ...

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